The Skinny on Night Terrors

You run in because your little one is screaming. You check to make sure there is nothing majorly wrong, only to see that it seems like they are still asleep. You try to soothe him, but he just screams louder. You pick her up, but then she starts flailing and trying to hit you.

NIGHT TERRORS.
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Tylenol & Down Syndrome

Hello my friends, welcome back! I used #Rockingthe21st tonight, so I thought we would get a little rock going.

I am so glad to be back. I took a couple of days, went to a conference and also have been trying to get over this cough. For those who have been watching for a while, I did go to the doctor, and they confirmed there is nothing wrong with me more than spasming bronchioles.

Well let’s get into it. If you don’t know me, my name is Josh Decker and I am so glad that you are joining in. I definitely encourage you to go back and listen to some of my previous videos talking a little bit about what we know about Down Syndrome.
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Why You Must Be The Expert In Down Syndrome

Hello my friends, good morning! He was reaching for me to pick him up, now he wants down. Hold on…

So I was planning to have Noah on this morning, but apparently he had other plans this morning. So I want to jump right in and share with a couple stories about advocating for our kids and why it’s so important to understand what’s really going on inside of them.
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The Difference Between Inclusion and Treatment

Good morning friends, there is no music this morning, I’m sorry! I am not in my home office this morning and don’t have my cool setup with music and all of that. But, I wanted to continue the conversation we started yesterday. I promise we will not go as long as I went yesterday. Thank you for joining me if you did yesterday, thank you for joining me today.

I want to talk for a minute about the difference between advocating for inclusion and treatment for our kids. What I have found in the Down Syndrome community is that sometimes there is, outside of major things would either require surgery or prescriptive intervention on an emergency basis, there is this idea that there is nothing wrong with our kids. So I want to talk about this and dig into it and understand given what we talked about yesterday given the extra genetic material and what it does, and making sure our minds are right before we start digging into more of that science part of what’s actually going on with our kids.
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The Basics of Down Syndrome

Good afternoon my friends, my name is Josh Decker, and I am so glad you are joining me. We are at the end of October. October is Down Syndrome Awareness month, and I had the intent of talking about Down Syndrome and the things that are true and the things are misunderstood, and I failed! So now it is time to get on it! I don’t care if we are at the end of the month.

Even within the Down Syndrome Community, there is a lot of misunderstanding about Down Syndrome. So I am going to be doing a series of videos to talk about my wife and I have learned over the last like six months as we have studied from a very smart group of people including an MIT educated biochemist. People that are blowing my mind because they are so smart, but helping us to understand what is misunderstood about our children with Down Syndrome.

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